Progressive Supranuclear Palsy
Unlocking the secrets of brain disease:
Thank you for contacting CurePSP. We offer this guidebook as the definitive resource to help you on your challenging journey. I know from talking with patients, families, and care partners on a daily basis the struggles that lie ahead and have seen first-hand the tragic effects of PSP and related prime of life diseases at the conferences we hold for patients, families, care partners, and medical professionals.
CurePSP is committed to three related areas of service and support:
Care: We provide a full range of services and support to patients, families, and carepartners;
Consciousness: We educate physicians and allied healthcare professionals about PSP and related diseases so they may provide earlier and surer diagnoses and refer patients to clinical trials and support groups;
Cure: We fund research that has the potential to lead us to treatments and a cure for (Progressive Supranuclear Palsy) PSP and, ultimately, all other neurodegenerative diseases.
While we have not yet found treatments or a cure, there is great hope in the air. Research is accelerating and showing encouraging results. PSP, in particular, is now recognized as perhaps the most promising target for research and clinical trials that may lead to therapies for all neurodegenerative diseases. As such, it has the attention of both academic research institutions and pharmaceutical companies.
We are pleased to bring you this guidebook full of helpful information and advice from leading experts. We urge you to contact us if you require further information – or if you want to help with our cause. Meanwhile, we wish you the best as you embark on your journey. It will be difficult and challenging to be sure but know that you are not alone and that others are there to stand by you and to help lessen your burden.
100 Questions and Answers about restless legs syndrome (PDF)
Numerous scientific papers published in peer-reviewed journals and chapters in textbooks dealing with RLS in the last 20 years or so attest to the fact that RLS is a real neurological movement disorder severely impacting sleep and quality of life.
Restless legs syndrome-Willis Ekbom disease (PDF)
Despite few cases of partial or complete remission, idiopathic RLS is usually a chronic long-term condition with a longer duration for patients with an early onset of symptoms.
Restless legs syndrome: Diagnosis and treatment (PDF)
This book summarizes our current understanding of restless legs syndrome. The chapters cover all of the latest relevant restless legs syndrome science and pertinent related topics.
Polio (Deadly Diseases and Epidemics) 2nd Edition
Millions of people, especially those who are poor and living in developing countries, are also at risk from disabling communicable diseases such as polio, leprosy, lymphatic filariasis, and onchocerciasis.
Post-Polio Syndrome: Guide for polio survivors and families
Polio, like smallpox, is one of those ancient diseases that is destined to have a modern ending. According to the World Health Organization, acute paralytic poliomyelitis, after a run of many millennia, will be eliminated from the world not only in our lifetime but most likely in the next few years. In this country, the history of polio is much shorter.
The healing power of the breath: Simple techniques to reduce stress and anxiety, enhance concentration.
This book will introduce you to knowledge and modern research on stress reduction through breathwork that is just as relevant to health in modern life as it was in ancient times.
End the Insomnia Struggle: A Step-by-Step Guide
Insomnia is a large-scale problem, with one in three people experiencing insomnia in their lifetime, and about one in ten US adults reporting insomnia that is severe and chronic (National Institutes of Health, 2005).
The Effortless Sleep Method: The Incredible New Cure for Insomnia and Chronic Sleep Problems
Insomnia may seem almost to have a life of its own, an autonomous persona, or a self-sabotaging part of you over which you have no control; a monster, a possessing demon which taunts you by day and tortures you by night.
Evaluation of concussion and post concussion syndrome (PDF)
A blow to the head that results in an “altered state of consciousness”; represented by confusion; may or may not have unconsciousness; almost always some level of amnesia (memory loss): Post-traumatic amnesia / Retrograde amnesia
Bowen therapy for adult long term post concussion syndrome (PDF)
Because the damage to the body and brain was unique to each participant, it quickly became apparent that the selection of therapeutic procedures had to be customized to each participant.
Disorders of the Hand: Hand Reconstruction and Nerve Compression (PDF)
The hand has been called an extension of the brain, and the sensory and motor performance of the hand is based on the adequate function of components in the peripheral as well as the central nervous system.
Nerve Compression Syndromes (PDF)
Definitions, Radiculopathy, Mononeuropathy, Brachial Plexopathy, Sensory Supply to the Arm